Pierre Cousein, a 48-year-old computer scientist from Lille, has made the heartbreaking decision to undergo euthanasia in Belgium, set for Thursday, April 24, 2025. Diagnosed with Parkinson's disease ten years ago, Cousein describes his condition as a relentless struggle that has significantly diminished his quality of life.
During an emotional appearance on the talk show C à vous on April 22, Cousein shared his journey with the audience, stating, "I have received love, affection, and support." This decision, he explained, allowed him to confront the reality of his situation and prepare for his final moments with dignity.
Parkinson's disease, a progressive neurodegenerative disorder, has left Cousein battling severe motor issues, mental health challenges, and chronic pain. According to Santé Publique France, approximately 150,000 patients in France are afflicted with Parkinson's, with 25,000 new cases diagnosed each year. Unfortunately, there is no curative treatment available, and for Cousein, the medications have lost their effectiveness over the past three years, severely impacting his autonomy.
"Driving became difficult... I decided to stop driving, which meant dependence on others, stopping work, and reorganizing home care," he explained, illustrating the profound changes in his life. The once independent computer scientist now finds himself navigating a world where simple daily tasks have become monumental challenges.
As his condition worsened, Cousein felt trapped in his own body, describing it as a prison. "My body is my prison," he stated, emphasizing the emotional and physical toll the disease has taken on him. The relentless progression of Parkinson's has led him to seek what he calls the "ultimate care." This term reflects his desire to regain control over his life and end his suffering.
On the day of his planned euthanasia, Cousein will receive a lethal injection in a Brussels hospital. He has meticulously organized his final days, ensuring that he spends quality time with friends and family, sharing meals and heartfelt conversations. "I have made the most of these last moments under the sun, surrounded by my loved ones," he said, demonstrating an admirable spirit in the face of despair.
Cousein's journey toward euthanasia has not been taken lightly. He has worked closely with French doctors, including Dr. François Guillemot from the collective Accompagner mon choix de fin de vie, to navigate the legal requirements for euthanasia in Belgium. Two neurologists confirmed his diagnosis and the absence of alternative therapeutic options, allowing him to proceed with his decision.
In 2024, 106 French citizens chose to undergo euthanasia in Belgium, a reflection of the ongoing debate surrounding end-of-life choices in France, where euthanasia remains illegal. The current French law permits only deep and continuous sedation until death under strict conditions, leaving many seeking alternatives across the border.
Cousein's choice has sparked conversations about the ethics of euthanasia and the rights of individuals facing terminal illnesses. His poignant testimony has resonated with many, with social media users expressing their support and admiration for his courage. Comments such as "Absolutely heartbreaking" and "This man is profoundly moving!" flood the platforms as people engage with his story.
Reflecting on his decision, Cousein shared a metaphor that has guided him: "The end of life is not the end; it is a hunger for peace." This perspective has shaped his final days, allowing him to embrace the love and support surrounding him while preparing for his departure.
As the date of his euthanasia approaches, Cousein remains resolute in his choice. He has taken steps to ensure his affairs are in order, including administrative tasks and arrangements for his cremation. His final journey to Belgium will be accompanied by a convoy of cars filled with friends and family, a testament to the love he has cultivated throughout his life.
While Cousein's story is a personal one, it reflects broader societal issues regarding the treatment of terminal illnesses and the rights of individuals to choose their end-of-life options. The ongoing debate in France regarding euthanasia laws is expected to resume soon, following a temporary halt due to the dissolution of the National Assembly in 2024.
As Pierre Cousein prepares for his final moments, he embodies the struggle of many facing similar circumstances. His story is a reminder of the importance of compassion and understanding in discussions about life, death, and the choices individuals make in the face of unbearable suffering.
