Céline Dion, the iconic Canadian singer, has recently embraced a moment of joy and family amidst her ongoing battle with Stiff Person Syndrome (SPS). On March 19, 2025, Dion shared an uplifting video via social media, showcasing her spirited golf outing with her sons, René-Charles, Eddy, and Nelson. The 56-year-old singer was clad in a casual outfit, swinging her golf club and celebrating her shot with an enthusiastic dance to Gary Glitter’s "Rock and Roll Part II." "I had a beautiful day with my boys out on the course… Getting back into the swing of things! P.S. PGA Tour, how’s my swing?" she captioned her post, reflecting both her love for the sport and her desire to stay connected with her family.
The video instantly became a source of delight for her fans, who have witnessed her struggles since her SPS diagnosis in 2022. Comments flooded in, with many expressing their happiness at seeing Dion engage in something that brings her joy, especially given the challenges she has faced. "So happy to see you like this," a fan remarked, while another wrote, "It’s amazing seeing you like this! You deserve all the happiness." The official PGA Tour account even praised her, responding, "We believe that the ball will go on... great swing, even better dance moves from @CelineDion," highlighting the overwhelming positivity surrounding her recent activity.
Dion’s sharing of this video comes closely after she commemorated International Stiff-Person Syndrome Awareness Day, a significant moment where she emphasized the importance of awareness for this rare condition. In the days leading up to her golf outing, she reflected on her journey, sharing insight into her health and her efforts to raise awareness through her documentary, I Am: Celine Dion, which premiered in 2024. In this documentary, she candidly expressed how the last couple of years have presented immense challenges. "This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me," she revealed in a heartfelt interview.
The complexities of Stiff Person Syndrome, while often poorly understood, have profoundly affected her life. According to Dion, symptoms typically arise between ages 30 and 60, marked by debilitating muscle spasms and rigidity. "I started noticing signs when I was on the Taking Chances World Tour in the late 2000s," she explained in a 2024 interview with the Today Show. "I had to raise my kids. I had to hide. I had to try to be a hero while feeling my body leaving me, holding on to my own dreams." This candid admission sheds light on the struggle she faced not only as an artist but as a mother trying to protect her children from her health issues.
The responsibilities that came with her diagnosis drove Dion not just to fight for her health but also to make a difference. She notably donated $2 million to the University of Colorado Anschutz Medical Campus to establish the Endowed Chair in Autoimmune Neurology. "It's not a gift; it's a responsibility," reported Dion in videos shared during the donation announcement. Her heartfelt message resonated with those battling similar health conditions, encouraging them to hold onto hope: "I want to remind you: no matter what challenges or conditions you face, you are not alone. Please hold onto hope, because it will guide you through the hardest time." This advocacy work highlights her commitment to not just managing her own struggles but also supporting those facing similar challenges.
Beyond her advocacy, Dion's love for golf has always been a significant part of her life. Although she has never played professionally, she has developed a passion for the game, holding a notable golf handicap of 17. Her involvement in golf extends back to the 1990s when she and her late husband, René Angélil, bought the Le Mirage Golf Club in Terrebonne, Quebec, before selling it in 2020 but remained actively involved. In recent times, on March 4, 2025, Dion attended a TGL match at SoFi Center in Palm Beach Gardens, Florida, where she enjoyed watching her sons engage with the sport. She expressed her admiration for the innovative indoor league, saying, "It’s pretty impressive. We’ve been watching on TV. I’m very proud. My three kids are golfers, passionate about the game." This reveals not just her love for golf, but her joy in sharing this passion with her children.
The moments captured in Dion’s recent video reflect her resilience and joy in the face of adversity. As her fans and the public continue to rally support for her journey, it is clear that Dion’s spirit endures through the challenges of Stiff Person Syndrome. With her sons by her side, she is determined to embrace life fully, advocate for awareness, and find happiness while cherishing moments on the golf course.
