On March 21, 2025, individuals across the globe come together to celebrate World Down Syndrome Day. This day not only marks the triplication of the 21st chromosome, a hallmark cause of Down syndrome, but it also serves as a platform to raise awareness and advocate for acceptance and inclusion of individuals with Down syndrome in society.
The significance of the date, 3/21, ties closely to the condition, medically termed trisomy 21. This genetic anomaly was first discovered by Dr. Jérôme Lejeune in 1958, who is now regarded as the father of modern genetics. Born in 1926, Lejeune dedicated his life to research, identifying not only the chromosomal cause of Down syndrome but also advocating fiercely for the rights and dignity of those born with the condition.
As we reflect on the progress made, it is essential to recognize the contribution of figures like Dr. Lejeune. His research and advocacy have notably increased the life expectancy of individuals with Down syndrome from an average of around 10 years to nearly 60 years today. His legacy is further honored as he has been declared venerable within the Catholic Church and is on the path towards canonization, a recognition he achieved posthumously after his passing from lung cancer in 1994.
In local communities, various celebrations also occur. For instance, Jude Garrett, a third-grader with Down syndrome, has initiated a colorful movement by promoting the wearing of crazy, mismatched socks at schools throughout Weber County, Utah, aiming to foster an environment of inclusion and celebration of differences.
“I hope that through these silly socks, I can show that Down syndrome is not scary; it’s something to be celebrated,” said Jude’s mother, Kim Garrett. Thanks to her advocacy, 2,200 pairs of socks were distributed for this year’s World Down Syndrome Day celebration. Garrett’s goal is to create a learning environment where children like Jude can thrive alongside their peers.
The effort by Jude and his family resonates deeply with Jake Burger, a professional baseball player for the Texas Rangers. On this day, he and his wife Ashlyn are set to officially launch the Burger Family Foundation, which aims to empower families facing disabilities through direct support and transformative community programs. Inspired by their daughter Penelope, who was born with Down syndrome six months prior, Jake expressed, “We want to make Down syndrome cool,” emphasizing the importance of visibility and awareness.
The foundation will also work on creating a farm, aptly named Lucky Ranch, where children and adults with disabilities can engage in agricultural activities, promoting an active lifestyle and community involvement. This vision aligns with their commitment to erase the stigma attached to Down syndrome and foster a sense of belonging.
With a multitude of activities planned, ranging from community events to educational initiatives, the Burger Family Foundation sets the stage for meaningful change. The family plans to host a celebrity softball game and sell apparel featuring the number 21 to further fund their initiatives.
Today is not just a day to highlight challenges associated with Down syndrome but instead to celebrate the people who live with it and the advancements made in society toward inclusion and understanding. Across various schools and communities, children, families, teachers, and advocates unite in a shared goal of raising awareness and promoting acceptance.
Whether it’s through creative initiatives like wearing mismatched socks or serious advocacy work aimed at changing societal perceptions, the message remains clear: individuals with Down syndrome contribute richly to the tapestry of society and deserve every opportunity to flourish.
Indeed, on World Down Syndrome Day, we reaffirm our commitment to support, advocate, and celebrate the rights and well-being of all individuals with Down syndrome.
